In Aquitaine, associations are mobilized around sporting challenges or country meals. After an edition confined last year, the 35th edition of the Telethon begins this Friday, December 3 under the sign of the light. A mobilization to raise the counter of donations, during the 30 hours of direct, on the channels of France Televisions and beyond.
Take out your sneakers and gather your friends, the 2021 Vintage Telethon is back on the ground, near you! Last year, the Telethon in a confined version had despite everything raised more than 77 million euros.
Making gift packages, garage sales, shows, walks, snacks or country dinners, volunteers and associations have been active throughout Aquitaine for several days now and will be mobilized, especially this weekend of December 4-5, to collect donations and advance research.
In the Pyrénées-Atlantiques, Basque voices and traditional dances will enchant the evening at Orègue, near Saint Palais. A sequence animated by Delphine Roux, from France 3 Nouvelle Aquitaine, to be discovered live on France Télévisions channels, Saturday 4 December.
In Gironde, among the volunteer coordinators, Dalila Lhasnaoui (in charge of eastern Gironde), expressed his enthusiasm, “even if we had a few cancellations, mainly lotos for reasons of hygiene or spacing …“
She explains that in the department it is perhaps between 300 to 400 sporting or gastronomic events that have been organized (meals, walks, initiations, tastings, …). Many organizers, regulars as well as newcomers, have sometimes been slow to register while waiting for the latest potentially restrictive measures from the government, “some were a little frustrated by that “.
But to hear him, the volunteers are just as motivated because, in the context of covid, many need to share moments, “that’s the spirit of the Telethon“. She does not forget to remind us that for donations, it is 36-37, on the telethon.fr site but also when going to see a show or”eat a pancake …“
Throughout Aquitaine, teams have therefore organized hundreds of events. Look on the interactive map to see if there are any near you and here is a selection of some of them, by department.
Telethon Crêpes Party / in Mareuil en Périgord /SSaturday December 4 (9 a.m. to 4 p.m.) Come and taste a pancake, a pastry or have a drink and share a friendly moment for the Telethon! On site or to take away.
All Solidarity / in Brantôme en Périgord / SSaturday December 4 (8 a.m. to 5 p.m. / Town Hall Square) Visitors will be able to participate in the meal, in a gourmet walk, in the raffle, or browse the various sales and tasting stands for the benefit of the Telethon.
Night Tennis / in Hourtin / VFriday December 3 (6 p.m. to 9 p.m.) Come and discover the sensations of tennis in the dark and with music! Participation: 15 euros per person with access to the cold buffet, to the courts and of course to other activities at your favorite Tennis Club (Contact: 07 50 15 72 43)
Paella meal / in Saint-Pey-de-Castets / SSaturday December 4 (12 p.m. to 5 p.m.) Come and taste our delicious paella, friendly dish par excellence at the village hall for the benefit of the Telethon and come and raise the counter!
IN THE LANDES
Animations / in Sanguinet / SSaturday December 4 (9 a.m. to 1 p.m. / Place du marché) Multiple sporting, cultural and gourmet activities. Sale of pancakes, cakes and pretty porcelain objects. Come and admire also an exhibition of superb old vehicles!
Cyclo Tour / in Aire-sur-l’Adour / SSaturday 4 December (8 a.m. to 8 p.m.) and Sunday 5 (9 a.m. to 12 p.m.) The Cyclo Club Aturin is organizing two 25 km outings to come pedaling with the family for the benefit of the Telethon and a 60 km course for the more athletic!
Roquefort makes his Telethon / Du vendredi 3 to Sunday 5 December 2 The weekend of festivities for the benefit of the Telethon begins on Friday evening, at the Arbalosse village hall, with a show meal. On Saturday morning there will be judo entertainment, a sale of cakes and a Telethon shop and in the afternoon, a musical show. Saturday evening, the program continues with a show and a fashion show. And to conclude, try your luck, Sunday afternoon during the big lotto!
The Telethon walk / in Saint-Martin-Petit / DSunday December 5 (9 a.m. to 12 p.m.) Come take a big bowl of oxygen and climb the Telethon counter with a nice hike for young and old for the benefit of the Telethon.
IN THE PYRENEES-ATLANTIQUES
Underwater rugby / in Saint-Jean-de-Luz / Friday December 3 (8 p.m. to 10 p.m.) Rugby underwater? Yes ! Come and discover this fun and surprising activity at the swimming pool! Also come and learn to snorkel or have fun on the aquatic course. All profits will be donated to the Telethon.
Torchlight March / in Montardon / VFriday December 3 (6 p.m. to 7 p.m. / Place des Pyrénées) Utorchlight walk is organized by the hiking section of the rural hearth. Torches, lanterns, paper lanterns, anything that illuminates is welcome to discover this pretty village from a new angle!
This year, the telethon on France Television will be piloted in direct from Marseille with the rapper Soprano as the sponsor of the edition. The opportunity to meet, in particular, Jules who testifies with his mother Anaïs.
This is the first child with myotubular myopathy in France to benefit from gene therapy treatment, developed by Généthon. Since his injection on January 29, 2020, he has made immense progress: he breathes alone, talks non-stop and even learns to walk!
Find out more about the Telethon event
You are concerned and want to know more
Source : telethon.fr
- on collections made by associations near you
- by phone at 3637
- on the internet by following the link telethon.fr
The president of the AFM-Telethon organization, Laurence Tiennot-Herment, explains that the success of this 35th edition is “indispensable” car “the Telethon changed everything“, she adds.”We are in the midst of a medical revolution; these last years, things have accelerated“.
Today, 17 gene therapy drugs have been approved, five of which have been directly supported by AFM-Telethon, and 11 others have benefited from gene therapy developed for severe genetic immunodeficiencies (“bubble babies”).
This research was notably carried out by the Généthon, which celebrated its 30th anniversary last year. The state-of-the-art laboratory, funded by this charity marathon, has enabled several advances in gene therapy, which involves introducing genetic material into cells to treat a disease.
Un treatment of spinal muscular atrophy, a neuromuscular disease that condemned babies to early death a could in particular be put on the market two years ago. Forty children have benefited from these new treatments in France.
Trials are multiplying and could lead to new therapies in the years to come. A treatment is for example being tested to cure myotubular myopathy, a rare genetic disease of the skeletal muscles. A clinical trial could start in 2022 for girdle myopathies, which manifests as progressive muscle degeneration. Another is underway to treat a rare liver disease.
Thanks to research supported by AFM-Telethon, a first French cell therapy trial was also launched at the end of 2019 for rare diseases of the vision, after the development of a cell patch developed from embryonic stem cells. human.
Beyond rare diseases, which affect 3 million people in France, the innovations born in the laboratories supported by the Telethon also inspire therapeutic solutions for very widespread diseases: neurodegenerative diseases, cancers …
“Existing technologies do not allow the production of drugs of large-scale gene therapy“, warns Laurence Tiennot-Herment, however.
One of the future challenges will therefore be to be able to make treatments available to the greatest number of patients.
For 3 years, thanks to the treatments available, children condemned by the disease have been living and regaining their motor skills. Une true medical revolution according to specialists! But PThe more children are treated early, even before the first symptoms, the greater the chances of receding, or even disappearing, the disease.
The issue of screening for genetic diseases from birth becomes crucial. Bordeaux is a pilot in terms of newborn screening.